VictoriaLand Beauty (VLB) proudly supports Boston Children’s Hospital’s (BCH) with a commitment of 2% of all sales. VLB funds are designated to BCH’s Pediatric Ophthalmology Department, the largest in the country, to support their life-changing efforts to identify new diagnostic paradigms and treatment modalities for visually impaired children.
My 4 year old son Cyrus is one of the millions of children worldwide affected by a visual impairment. Cyrus was born a genetic disease known as familial exudative vitreoretinopathy (FEVR). FEVR is a hereditary disorder that affects the retina with symptoms that include vision loss or blindness, retinal detachment and strabismus. Cyrus is impacted by all of these impairments.
In 2017 we brought Cyrus to BCH, a Harvard Medical School affiliate ranked # 1 pediatric hospital by US News & World Report, to meet with Dr. Yoshihiro Yonekawa, BCH’s Director of Pediatric Retina Surgery, and his team. There, we learned more about the disease, its impact on Cyrus’s current vision, the recommended treatment and the “vision” for the future.
This visit was invaluable to all of our wellbeing—the knowledge, resources and recommended treatment protocol received from this amazing team empowered us with the hope that Cyrus will live a happy, fulfilling life with or without full vision. We now travel from Naples, Florida to Boston, Massachusetts biannually to monitor Cyrus’ s situation and to discuss further state-of-the-art treatments for FEVR with this amazing team.
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Recognizing the need to support as many visually impaired people as possible, VLB’s other important program focuses on making our products more accessible to visually impaired people.
As part of the VLB community, you’re supporting our mission to change lives for the better. This manifests itself in several ways—supporting BCH and their goal to “dream, dare and deliver until every child is well.”
Thank you for sharing my passion for changing the lives of visually impaired people, both children and adults, for the better. Together, we will dream, dare and deliver on our promise to help make the world a more inclusive place for all.