As you may know from reading my story, my home, Victorialand, is a fun, happy place. It’s a place that radiates joy, and most importantly, it’s where I’m a mom to four amazing children ranging from toddler to millennial.
Each of my children has their unique footprint in the world and in my heart. The joy and happiness that children bring to our homes and to the world at large is priceless. It’s something we should honor, celebrate and cherish. This sentiment, along with the birth of my youngest son Cyrus, who was born with an acute visual impairment, inspired VLB’s Giving Back program.
Who We Support
The World Health Organization estimates that there are almost 2 million children globally with visually impairments. These children need our help to ensure that they, too, can dream, dare, and deliver.
Victorialand Beauty proudly supports Boston Children’s Hospital’s (BCH) with a commitment of 2 % of all sales. VLB funds are designated to BCH’s Pediatric Ophthalmology Department, the largest in the country, to support their life-changing efforts to identify new diagnostic paradigms and treatment modalities for visually impaired children.
My 18-month old son, Cyrus, is a child affected by a chronic illness. Cyrus was born visually impaired due to a genetic disease known as familial exudative vitreoretinopathy (FEVR). FEVR is a hereditary disorder that affects the retina with symptoms that include vision loss or blindness, retinal detachment and strabismus. Cyrus is impacted by all of these impairments.
We recently traveled to BCH, a Harvard Medical School affiliate that is ranked # 1 pediatric hospital by US News & World Report, to meet with Dr. Yoshihiro Yonekawa, the Director of Pediatric Retina Surgery at BCH, and his team to learn more about the disease, its impact on Cyrus’ current vision, the recommended treatment and the “vision” for the future.
The visit was invaluable—the knowledge, resources and recommended treatment protocol received from this amazing team empowered us with the hope that our dream for Cyrus to live a happy, fulfilling life can be a reality with or without full vision. We will continue to make semi-annual visits to BCH to monitor Cyrus’ situation, and to discuss further state-of-the-art treatments for FEVR.
As part of the VLB community, you’re supporting BCH’s goal to “dream, dare and deliver until every child is well.” For more information on their campaigns, click here.
Additionally, you’ll be supporting a product that will empower you and thousands of visually impaired people with skin that looks and feels good enough to #GoNaked. Utilizing The CyR.U.S. System, VLB is made accessible to people who face the challenge of navigating a world without the vision to do so. This tactile recognition system acknowledges the need for visually impaired people to have the independence to make their own purchase decisions and to have easy access to their beauty products within the home.
The need to create handmade beauty product markers with tape, tags, handmade Braille labels, etc.is “so yesterday.” We heard the sighs of frustration from VLB’s visually impaired community and responded with our packaging for visually impaired. Thank you for sharing my passion for supporting the lives of those who are visually impaired, both children and adults. Together, we will dream, dare and deliver on our promise to help make the world a more inclusive place for all.